When a disability forces you to stop working, your retirement savings may feel like a lifeline, but withdrawing funds before age 59 1/2 normally triggers a 10% early distribution penalty on top of regular income taxes. The IRS does offer relief for people who are "totally and permanently disabled," but qualifying isn't automatic. To meet the IRS's standard, you must have a long-term physical or mental impairment that prevents you from performing any "substantial gainful activity." This definition overlaps with, but differs from, Social Security's disability standard, the VA's disability ratings, and most long-term disability insurance policies in ways that can matter.
Below we'll explain who qualifies, how the IRS's definition stacks up against other disability standards, and exactly how to claim the exception on your return.
The disability exception applies to the early distribution tax for the following:
To qualify, you must meet the IRS's definition of totally and permanently disabled. The IRS defines disability as an inability to perform any substantial gainful activity (more than an insignificant amount of work) because of a physical or mental impairment that’s expected to be of "long, continued, and indefinite duration" (or to result in death) (see IRS Publication 590-B).
The IRS requires you to have a doctor's opinion saying you’re totally disabled and will remain disabled permanently or for a very long time. But you don’t have to submit your doctor’s statement with your tax return. You just need to have it in your possession when you take the exception on your tax return. The exception is laid out in the Internal Revenue Code at 26 U.S.C. 72(t)(2)(A)(iii).
The IRS's definition of disability is similar to the definitions used by Social Security and the VA. But there are some differences.
The IRS's definition of disability first appears to be quite similar to Social Security's definition of disability, but the IRS's definition is easier to meet in one way and harder to meet in another way. Both definitions require that you're unable to perform "any substantial gainful activity."
IRS regulations (26 C.F.R 1.72-17A(f)) clarify that “gainful activity” refers to the type of work you were doing before becoming disabled. The IRS will examine whether your impairments prevent you from engaging in your customary work activity or any work activity comparable to it. So, you don’t necessarily need to be unfit for all work, just work similar to what you customarily did before you became disabled. This is an easier standard to meet than Social Security’s standard, which requires that you can’t do any type of substantial work.
On the other hand, Social requires your inability to work to last just one year, whereas the IRS requires you to be disabled for a "long and indefinite duration."
So, having been found disabled for Social Security disability or SSI purposes doesn’t guarantee the IRS will allow you to use the disability exception to the 10% penalty, but it can help.
That said, if Social Security has classified your condition as "Medical Improvement Not Expected” (MINE), you’ll likely meet the IRS’s definition of totally and permanently disabled. If, when your initial award letter came from Social Security, it said your case would be reviewed in five to seven years, you were classified as MINE.
The IRS's definition of permanent and total disability is similar to the VA rating for a veteran who has been deemed 100% disabled "based upon individual unemployability" (TDIU). But having a 100% TDIU rating doesn’t force the IRS to find you eligible for the exception to the early distribution tax.
The definition of disabled found in most long-term disability (LTD) plans is similar to the IRS's definition. Many LTD plans find you disabled if you can’t do your own occupation, as does the IRS.
If your LTD insurance provider has found you unable to do "your own occupation" or "any occupation," you have a good chance of meeting the IRS’s definition of disabled. But you’ll still need a doctor’s statement saying your disability is expected to be permanent or last a very long time.
If you don't meet the IRS's strict disability standard, which requires a condition of "long, continued, and indefinite duration," you can avoid the 10% penalty if you're terminally ill. You can withdraw retirement funds penalty-free if a physician certifies that you have a terminal illness or physical condition reasonably expected to result in death within seven years. To claim this exception, use Exception Code 20 on Form 5329, Line 2.
Unlike with the disability exception, if you withdraw money from your retirement account under the terminal illness exception, you can repay it within three years. This exception is useful for individuals with a serious diagnosis who don't expect to be permanently and indefinitely disabled. (IRS Notice 2024-2.)
Whether or not you've been found disabled by an agency other than the IRS, you'll still have to have evidence from the doctor of your disability, written before you take the distribution from your retirement plan. Specifically, you’ll need a statement from your doctor that says you can’t work due to a physical or mental disability and that you’ll be unable to work permanently or for a very long time.
You'll probably have to file IRS Form 5329 when you submit your tax return for the year, with one exception. If you received a 1099-R form from your retirement plan administrator, look at box 7, "distribution code." If there’s a 03 in the box, your distribution was classified correctly (and the retirement plan probably asked you for evidence of your disability). In that case, you do not need to file Form 5329.
It's more likely, however, that your 1099-R will have a distribution code in box 7 of “01.” In that case, you’ll need to complete Form 5329 to claim the exception. Where the form asks for the code to the exception to the additional tax for early distributions, you'll enter code 03 for disability. See the instructions to Form 5329 for more information.
Here's an example of how you would fill out the form if you had taken an early withdrawal of $10,000 from your retirement plan.
| Part I | Additional Tax on Early Distributions. Complete this part if you took a taxable distribution (other than a qualified disaster recovery distribution) before you reached age 59½ from a qualified retirement plan (including an IRA) or modified endowment contract (unless you are reporting this tax directly on Schedule 2 (Form 1040)—see above). You may also have to complete this part to indicate that you qualify for an exception to the additional tax on early distributions or for certain Roth IRA distributions. See instructions. | ||
| 1 | Early distributions includible in income (see instructions). For Roth IRA distributions, see instructions. | 1 | 10,000 |
| 2 | Early distributions included on line 1 that are not subject to the additional tax (see instructions). Enter the appropriate exception number from the instructions: 03 |
2 | 10,000 |
| 3 | Amount subject to additional tax. Subtract line 2 from line 1 | 3 | 0 |
| 4 | Additional tax. Enter 10% (0.10) of line 3. Include this amount on Schedule 2 (Form 1040), line 8 | 4 | 0 |
You might benefit by consulting with a certified public accountant (CPA) or an enrolled agent (EA) before claiming an exception to the early distribution penalty on your tax return. You might also consider hiring a CPA or EA to do your tax return for the year(s) you take an early distribution.
Learn more about other types of assistance available for people with disabilities.