Friday, December 21, 2007

Doubting the Existence of Fibromyalgia and Chronic Fatigue

I read an article in the Arizona Republic that discusses fibromyaglia and chronic fatigue and the skepticism that each condition has encountered from the medical community.

I know a bit about this myself. As a disability examiner and in working on the representation side of social security disability claims and SSI claims, I found that many treating physicians were likely to "blow off" both conditions. And, of course, in the case of fibromyalgia, this situation is not helped by the fact that a number of psychiatrists continue to deliver the diagnosis of fibromyalgia for the patients they treat (further enhancing the perception that this is a condition that is rooted in someone's mental state).

Why do physicians treat chronic fatigue and fibromyalgia with skepticism and sometimes even hostility? My own feeling is that this may occur, to some exent, because these are conditions that are not entirely quantifiable. After all, both are still carrying the label of "syndrome", which essentially means that medical science does not know enough about the cause and origin of either, and, consequently, there are few treatment modalities. And, of course, there are those characteristics of modern physicians that we've all encountered at one point or another.

1. Doctors don't spend time with their patients. This is typically due to the number of patients they have. However, when a doctor's visit equates to spending 30-45 minutes in the waiting room and 10 minutes being seen, there's not much opportunity for doctor-patient discussion and getting a proper description of one's symptomology.

2. Doctors equate treatment with the prescription of medication. Period.

I may be wrong about this, but I'm not aware of any medications that exist solely to treat chronic fatigue, meaning that doctors who enounter this condition among their patients have little to do, based on their approach to disease management (prescribe a pill). This by itself may form part of the basis for their own skepticism, and at times annoyance and hostility.

Fortunately, for fibromyalgia sufferers, there is a new drug that has been approved for their use: lyrica. The prescription of lyrica may not only directly help FMS patients, but may go some distance in validating the existence of fibromyalgia in some doctor's minds.




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  • Chronic Fatigue, CBT, and Graded exercise therapy

    According to an article in The Autralian, individuals suffering from chronic fatigue may have a poor sense of their own threhold for fatigue. This is described as the point at which their chronic fatigue symptoms are worsensed by engaging in physical activity. The result of engaging in excessive physical activity or simply physical activity at the wrong time (perhaps when chronic fatigue symptoms are already on the upswing) is often an extended period of fatigue. It can also result in a cycle of anxiety and increased susceptibility to CFS symptons.

    Apparently, as of yet, there are no medications that effectively deal with chronic fatigue symptoms. However, there are other approaches that exist which are designed to mediate and hopefully reduce CFS symptoms, or at least their severity.

    One approach is CBT, or cognitive behavioral therapy. CBT involves managing an individual's sleep cycle, and providing psychological input and advice, the goal being to improve a patient's tolerance to activities that have had the effect of exacerbating their fatigue and pain symptoms.

    Another approach is GET, or graded exercise therapy. With GET, daily activity levels are monitored to ascertain a person's threshold point for experiencing chronic fatigue symptoms. Once that has been decided, an attempt is made to manage a person's activity habits to avoid crossing the threshold point.

    Are either of these strategies proven and effective? Currently, there is an ongoing study to determine if either approach may be of benefit to cancer patients who are experiencing fatigue, presumably after chemotherapy.




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  • Thursday, December 20, 2007

    Obtaining Disability Benefits for Wounded Soldiers

    The process for obtaining health care benefits for wounded service members has been a long and frustrating one for most of the United States' wounded warriors. The procedure has required going through several different systems, while waiting anywhere from six months to two years before receiving benefits. Fortunately, the Defense Department and Department of Veteran Affairs have joined forces to create a new, streamlined system that is promising to change the face of service member health care. This new pilot system is said to cut the processes and waiting time in half for America’s soldiers.

    Media reports fueled the change after publicizing health care issues from Walter Reed Army Medical System. The media reports highlighted complaints from service members and their families that were fielded from task forces, review groups and a host of commissions. The reviews and reports asked for a more effective system, and their requests were heard.

    The problem with the system was contributed to by duplicate processes at the Department of Defense and the Veteran Affairs department. These included duplicate physicals, duplicate ratings and duplicate evaluations. Because service members had to go through each of the required processes twice, they oftentimes received different ratings and benefit levels. The new system agrees that the VA will manage the initial physical exam and will set the rating to determine what type of discharge and benefits they will receive. This streamlined process will allow service members to collect their disability benefits within a few weeks.

    The Department of Defense and the department of Veteran Affairs have agreed to work together closely and abide by the new set rules. The pilot program is already underway at Malcolm Grow Medical Center on Andrews Air Force Base, Md., Walter Reed Army Medical Center in Washington, D.C. and the National Naval Medical Center in Bethesda, Md. The new procedure has been tested and reported favorable by eight soldiers who had experienced the previous system.

    The two agencies have also announced a partnership to find 10 federal recovery coordinators to oversee the needs of service members that have been severely injured. The coordinators will help service members and their families through the rehabilitation and recovery process, making sure they get the care they and their families need. In addition, the DoD and VA have also decided to develop a joint inpatient medical record system and have already began operations at a center of excellence for psychological health and traumatic brain injury. They predict the center will open in October of 2009.



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  • Past Posts

    Here's a list of past posts to make finding them easier



    Losing a Disability Case - How to Lose an SSD or SSI Claim
    New Drug Stimulates T-Cells and May Help Multiple Sclerosis
    Heart Failure Raises Risks After Non-Cardiac Surgeries
    If You Were Approved for Disability in One State Can You Move and still get benefits?
    Will Social Security Understand What My Medical Records Have to Say?
    Multiple Sclerosis and Vision
    How can we ‘Stop Atherosclerosis in Native Diabetics’?
    Caffeine May Help MS from Developing
    Multiple Sclerosis and Vision
    Avoidance of Back Pain
    Are Alcoholism and Anxiety Connected?
    Working and Applying for Social Security Disability
    Can you get a second Social Security Disability Hearing if a judge denies you?
    When should you get a Representative for Social Security Disability or SSI?
    I Did All The Work On My Disability Case - Why Should I Pay My Lawyer?
    Worker’s Compensation Rights
    VA System Needs to be Updated
    Will Social Security disability cover sleep apnea as a disability?
    Will Worker’s Compensation Take Care of You?
    Workers Compensation Issued Improper Payments
    Worker’s Compensation Dental Treatment Non-Existent
    Designer t-cells suppress multiple sclerosis in mice
    Veterans Affairs Department Tries to Improve Claim Processes
    Pilot Project for Disabilities Criticized
    Massage may be more than Relaxation for Migraine Sufferers
    The Social Security Disability Five Step Sequential Evaluation Process
    Restricting Insulin Can Cause Women to Die Early
    Multiple Sclerosis on the Rise in Children
    Just a few comments
    Genetic Susceptibility to shyness - the shyness Gene
    Social Security Disability Articles page updated
    Could Genetics be the cause of Lupus
    I Heard That Social Security Disability Will Deny You Several Times
    Disability Determination for Social Security Disability Benefits
    Social Security Disability Forms and letters
    Social Security Disability Application Interview
    SSD Benefits, Depression, and Mental Testing
    How Can You Prove a Social Security Disability Case if You Aren’t Able to Go to the Doctor?
    Snore quietly and reduce your chances of cardiovascular diseases
    What happens when Lasik Surgery Fails
    Heart Disease on the Rise Once Again in the United States
    Number of Strokes Among Middle Age Women Triples due to Obesity
    Chronic Pain Alters the way the brain Processes Information
    New Cervical Artificial Disc Surgery
    Can sleep disorders signify other problems?
    New Research indicates too many immune cells may trigger Lupus
    For the sake of your own health, avoid depressed doctors
    Virginia Disability Attorney
    Should Type II Diabetes Sufferers risk Intensive Insulin Therapy
    An Improved Understanding of Fibromyalgia may lead to Better Treatment Options
    Social Security Disability Attorney Fee
    Social Security Disability - Mental Impairment Qualifications
    Budget shortfalls for Social Security still in budget
    Qualifying for disability on the first application
    Winning your Social Security Disability
    Social Security Comparable to a 225, 000.00 retirement plan for an average retiree
    Study find no evidence exists that supports a link between autism and vaccine
    Social Security Disability Decision Process
    Lyme Disease may result in very severe symptoms
    SSD Reconsideration
    Anti-seizure meds and the possible link to suicidal ideations
    Does Premature Birth Increase the likelihood of Adult Disability?
    Understanding Chronic Pain
    Social Security: Congress just doesn't get it
    Lessening MS frequency and exacerbations
    Another Reason to get Representation for a Social Security Disability or SSI Case
    Do I need to have a Representative at a Social Security Disability Hearing?
    Fampridine and MS
    SS Reconsideration
    Requirements for Disability Benefits
    Migraines and a Hole in the Heart
    How long does it take for a reconsideration for SSI?
    Management of migraines
    Social Security Ticket to Work program
    Eligibility for disability benefits from SSA
    Sending the wrong forms can be costly
    Reducing the Backlog for the disabled
    Longer Lives for the Elderly
    Wheelchairs vs Snowplows
    Heart Disease Killing Young Women
    Robot Befriends Disabled Children
    A Call for disability rights
    The ADA and Service Animals - Service Animals are not considered “Pets”
    Sources of Fatigue
    Disability Denial Costs More than Time
    A New Generation of Disability Activists
    Canadians Speak Out About Disabilities
    Obtaining Disability Benefits for Wounded Soldiers
    Chronic Fatigue, CBT, and Graded exercise therapy
    Doubting the Existence of Fibromyalgia and Chronic Fatigue



    Tuesday, December 18, 2007

    Canadians Speak Out About Disabilities

    A new study from Statistics Canada has shown that nearly 4.4 million people in Canada have a disability, whether a physical or mental condition, that restricts their activities and affects their daily living.

    Those numbers reflect a high 16% of adults with a disability and over 3.5% of children. Out of these statistics 35% report only a mild daily living limitation, while 25% say they experience a moderate limitation and the largest percentage – 40% - report serious and difficult limitations.

    Every province in Canada has reported an increase since 2002, though there are provincial variations in numbers, with Quebec being relatively low and Nova Scotia being quite high. Over 700,000 have reported a new disability within the last five years.

    The high jump in numbers is being contributed to the fact that people are less ashamed and less likely to hide their disabilities than they were in previous years, especially learning disabilities. With growing support, activism and assistance for disability rights, people feel more comfortable admitting their limitations. The fact that the population is aging and that better data collection is available also play a role in the climbing numbers.

    The types of disabilities varied greatly with the age groups: the elderly reported more mobility limitations, middle-aged Canadians reported more chronic pain and children's disabilities were related mostly to chronic conditions such as autism and asthma.

    Surprisingly, developmental disabilities such as Autism Spectrum Disorders and Cerebral Palsy had declined, while Learning Disabilities (LD) such as Attention Deficit/Hyperactivity Disorder (ADHD), Dyslexia and Auditory and Visual Processing Disorders showed an escalation.

    The statistics are distressing for many organizations and institutions working to improve the quality of life for those with disabilities. While the disabled population is growing, so are their service and health care needs. Despite growing interest in and support for disability rights, many aren’t getting the services and care they need, from jobs and wheelchairs, to
    accessible communities.

    Though it is a positive turn of events that disabled people are speaking out about their physical and mental limitations, Canada still has a long way to go to build awareness that can set forth practical solutions to support their growing disabled community.









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